Dog Food is not SO Bad - NOT!
Currently Connor can have visitors on a 1-on-1 basis and needs to go through Shan.
Catching up for both updates today, due to a busy day with Connor. Therapy continued with more stretching, standing and moving around in his wheelchair. His left shoulder is beginning to bother him with pain at the joint due to gravity weighing on his forearm. The more that he can continue to utilize the arm and strengthen his joint, the more he will increase the tightness of the muscles that surround the shoulder-to-arm connection. They are utilizing a sling to help support the arm when standing so he can focus on the stand in lieu of focusing on the arm.
After a successful swallow test with the audiologist, which involved green fluids and a camera down his nose to verify that all fluids were going down the correct tube, he now has a cap on the trach and is breathing through his nose and mouth. Additionally he is speaking with his vocal cords and he sounds like the old Connor we know and love.
Tonight he was cleared to eat puréed foods and dined on mac-n-cheese, meatballs and gravy and for dessert he had thick apple juice. All items were described as tasting like dog food by Connor. But he successfully ate the quantity of food they wanted him to eat and swallowed properly. The goal currently is to repeat this process for each meal so they will remove the feeding tube from his nose by the beginning of the week. Connor whispered to me "Are you keeping track of what I am eating? I will only do this once."
We have also been informed that his skull replacement surgery is scheduled forWednesday Aug 23 at 1pm . The neurosurgeon came by earlier in the day to high-five Connor and to tell him the good news of the upcoming surgery. This Dr is so excited with Connor, as he should be with the amazing job he performed.
Well we are all exhausted. Shan is headed home to sleep tonight in a real bed with the midgets, while Dave gets to enjoy the quality accommodations of Hotel Emanuel. More to follow - goodnight all.
Catching up for both updates today, due to a busy day with Connor. Therapy continued with more stretching, standing and moving around in his wheelchair. His left shoulder is beginning to bother him with pain at the joint due to gravity weighing on his forearm. The more that he can continue to utilize the arm and strengthen his joint, the more he will increase the tightness of the muscles that surround the shoulder-to-arm connection. They are utilizing a sling to help support the arm when standing so he can focus on the stand in lieu of focusing on the arm.
After a successful swallow test with the audiologist, which involved green fluids and a camera down his nose to verify that all fluids were going down the correct tube, he now has a cap on the trach and is breathing through his nose and mouth. Additionally he is speaking with his vocal cords and he sounds like the old Connor we know and love.
Tonight he was cleared to eat puréed foods and dined on mac-n-cheese, meatballs and gravy and for dessert he had thick apple juice. All items were described as tasting like dog food by Connor. But he successfully ate the quantity of food they wanted him to eat and swallowed properly. The goal currently is to repeat this process for each meal so they will remove the feeding tube from his nose by the beginning of the week. Connor whispered to me "Are you keeping track of what I am eating? I will only do this once."
We have also been informed that his skull replacement surgery is scheduled for
Well we are all exhausted. Shan is headed home to sleep tonight in a real bed with the midgets, while Dave gets to enjoy the quality accommodations of Hotel Emanuel. More to follow - goodnight all.
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