End of Year Update

As we get to the end of this year, we can only say thank you to all.  This year has kicked our asses and we are glad to see it end.
First and foremost an update on Connor:

He continues to heal and improve daily at home.  His last surgery was cancelled on October 30 which keeps his total count at 4 surgeries to repair his skull since July 17th.  We (and he) are thankful that his infection level reduced during October while accepting the new skull replacement piece.  He had been seizure free since the end of September but unfortunately many of his daily activities from timeliness of medication, low blood sugar and over-stimulation seem to have caught up to him.  On December 9 he suffered another seizure while at home and after a long day of activities.  With some changes to his activities, he begins anew and continues on.  Each week he goes to therapy (OT, PT and Speech) near home and has started working with a trainer at a local fitness club.  We see improvement in his every activity and strive daily to motivate him.  

We go to see Dr Soldevilla on Monday to talk about changing his seizure meds.  Connor would like to find one with less side effects and especially one that isn't depressive.  Also, he is planning a trip to see his good friend, Matt in Canada.  The trip may be delayed due to possible new meds.  But we anticipate the trip happening in the next two months.  Connor plans to take one class at Clark CC in the spring for two reasons - 1. he feels it is the right time and 2. he has to take at least one class to keep his standing as a student there.

All this is good news and shows steady healing progress.  Most of the time Connor can't see the forest through the trees.  He feels like his healing is at a standstill.  But taking a step back to look at what he has been up to for the last month definitely helps him realize that it IS happening.




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